Friday, January 11, 2008

Are you tired?

Mr 'H' each morning is tired:
"I'm tired mummy. Are you tired?"
No not really.
"I am"

5 mins later:

"Hi mummy"
Hello what are you up to?
"I'm tired"
Then why don't you go back to bed
"I'm too tired to go back to bed"
Then go lay on the sofa
"I think I'm too tired".

5 mins later - conversation with budgie Ferrari....

"Hi Ferrari. I'm tired"
"Are you tired Ferrari?"
"I think I am tired"
"Mummy's not tired."
"She will get tired of me telling her I'm tired"
"But I am tired Ferrari"
"Maybe I go back to bed".
"I think I am too tired"

15 mins later

"Morning Papa"
Good morning. You look full of energy
"But I'm tired. Are you tired Papa?"
No
"Mummy's not tired either. Ferrari's not tired. I'm tired".
Why are you tired? Didn't you sleep well?
"I don't know. I'm too tired to know this. I go see if Mummy's tired now."

The morning of an 8year old with fibular hemimelia, congenital short femur, valgus and tarsal coalition

2 Comments:

At January 11, 2008 at 4:33 AM , Blogger c said...

Hi Kaz,

I've developed Tarsal Coalition as congenital problem (my calf was smaller than a normal one).

There are different kinds of tarsal coalition some of them doesn't have to be operated. Mine has to be.

I'm a very active person and when they said that I have to be operated I depressed a 'little' bit.

After the operation I started a blog where I write how I'm feeling or as you see whatever I'm thinking about.

After some weeks I realized that I want to help people in rehab process as well. I was operated on November 14th so I've spent almost two months in a bed.

My experience (both written the blog and rehabing my foot) was great. I've had only a couple of really bad moments but nothing else. And I want to help others with my experience.

I can't compare myself with your son, I'm deeply sorry about his fibular hemimelia, so anything is in my hand to help you please tell me. I'm in conversations to start a project in Spain and USA to help people in rehab process / affected by this kind of problems. I will let you know about this if you want.

As I told you let me know If I can help you.

r

 
At January 12, 2008 at 5:58 PM , Blogger Kaz said...

Nov 14th is my little one's birthday.

Apparently his tarsal coalition is common with hemimelia. But it doesn't help to be just told this. I just got told that he has a tarsal coalition that needs to be looked into as it is causing a lot of pain. However since they have done a lot of tests, xrays, ct scans and mri but that's all. So I've tried to get as much info from the web about what it is and what treatment is usually done, so I know what may happen.
We have another appointment tomorrow, but I dont know the right questions to ask

 

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